SURVIVING LYME DISEASE

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When I recently contracted Lyme Disease and began doing research about it online, I realized something was very, very wrong. Lyme was “controversial.” Doctors, scientists and sufferers all seemed to be at war. It was difficult to get consistent information, especially about effective treatment. I am currently finally being treated and my symptoms are slowly diminishing. I will be on antibiotics for the next 2 months. I have been conferring with a good friend who suffered horribly from Lyme several years ago, was on antibiotics for 3 months (with the possibility of going on IV antibiotics), liquid Advil for the joint pain, and steroids for the mild encephalitis (brain swelling). It took her 2 years to completely recover. It is possible!

If you get BITTEN BY A TICK and get a telltale Lyme bulls-eye, it will be clear that you have been bitten by a tick infected with Lyme disease. If you show a doctor the bullseye, you will immediately be put on antibiotics and, if you caught it quickly enough (something like 24-72 hours), you may not develop any symptoms...and after your course of antibiotics you hopefully will have eradicated the bacteria from your system. If symptoms come back, you will have to go back on antibiotics (even for a long period of time).

If you do NOT GET A BULLS-EYE at the site of the bite, are not even aware that you were bitten by a tick, wait longer than 24-72 hours, or don't find a doctor who understands Lyme and its treatment (or how antibiotics work), you are in a for a fight.

TESTS for Lyme are tricky. You most likely won't show up positive within the first three weeks of getting bitten. But you will probably have horrible symptoms by then and no one will "believe" they're Lyme until you test positive. There are other tests that need to be taken to determine Lyme, but they can also be false-negatives. Lyme is kind of like rabies. You need to get

on the drugs BEFORE you test positive. Once you have symptoms (for rabies, it's too late), Lyme Disease has gotten the upper hand and it's going to take a long time to conquer this now.

If you were bitten by some kind of unknown bug, or suspect you were bitten and have all the SYMPTOMS of Lyme (look them up, but there are more than what you see and they continually morph and surprise you and run around your body)--you should definitely begin a course of antibiotics. If they work? Well, the proof is in the pudding.

What kind of ANTIBIOTICS? Doxycycline hyclate is what works for Lyme. (Doxycycline mono does NOT work for Lyme.) 100mg twice a day, every 12 hours. Sadly, the new protocol for Lyme (no matter if you just got bit or have been suffering with symptoms for a while) is 2 weeks and that's it. You will be booted off the medicine even if it has been working and your symptoms are starting to lessen. The symptoms will return with a vengeance, and you will be told you have PLDTS "Post Lyme Disease Treatment Syndrome," and you will suffer for the rest of your life. You will probably also be told the symptoms are all in your head and your actually mentally ill.

MY ADVICE: If you don't have a bulls-eye or if you test negative for Lyme but know you got bit or suspect you got bit, find a REGULAR doctor who understands that for some diseases, antibiotics must be prolonged. In fact, for any disease where you're taking antibiotics, you should be asymptomatic for at least one week before you go off them. For Lyme, you may need to be asymptomatic even longer if you had symptoms for a while.

EXCELLENT ARTICLE ON WHY SOME LYME SUFFERERS AREN'T GETTING HELP AND HOW A LONG COURSE OF ANTIBIOTICS IS THE ONLY SCIENTIFIC TREATMENT FOR LYME:
https://www.nationalobserver.com/2018/03/07/news/ticks-creep-canada-bringing-lyme-disease-and-confusion-them







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